Twilight Insights in the ER

When a local corporate hospital merged their Women’s and Children’s wings, they took the opportunity to integrate the arts into both the facility design and the wellness program. This is big news in my circles. Arts and healthcare collaborators are reaching a tipping point based on five decades of practice and lab research.

My fall reading recommendation — Your Brain on Art — is a primer for everyone interested in the neuroscience behind creativity.

Dad ended up in this new hospital wing for no reason having to do with women and children. Rather, he was overflow from the regular hospital, recently discharged from an ill-informed ER experience. The culprit, me. A common UTI developing in him caught me off-guard.

He’s 88, and I’m his last born child. At 52, my professional role shifted this year from CEO to stay-at-home daughter.

On that Friday morning, I was already up early working from temporary housing, a residence hotel where Dad and I had been staying. A few weeks earlier, the roof blew off his Tempe townhome in a catastrophic weather event. Insurance moved us both down the road, and a long way from anything we knew as normal. 

I quickly settled into working from home at the hotel. When Dad’s pain crisis began, I was tucked into the grungy lounge chair contemplating the day ahead and the tennis court view from the bedroom window. Sensing I might be here awhile, I set up my own tiny C-suite.

He called my name from the other room, Anne! 

He never does this.

Stepping through the doorway into the kitchenette, Dad was doubled over in 7-level pain, unable to sit, stand, or lay down comfortably. What he described as a belly ache turned out to be an acute urinary infection combined with equipment malfunction. The mental fog resulting from serious dehydration left him only barely conscious with few words or corporeal capacities to help himself.

He was out of it the day before, but this was different. Symptoms were sudden and the pressure seemed unbearable. This was my first serious pain event with Dad. I was a novice against his medical dilemma. At the time, my strength was to be a daughter fiercely determined to help him.

That morning, I also received what would become scores of emotionally-criminal emails from work. I won’t repeat, except to say that toxifying my work climate over the next 90 days was both aim and effect. One nasty email began with, Sorry about your dad, but…

I took Dad straight to the ER and stayed overnight through the weekend. The bullying emails poured in as I watched him sleep and receive fluids, passing the hours by the alarms and alerts of his heart, lung, and blood monitors. Middle of the night intrusions built up a grief-filled gratitude for the nurses, CNAs, lab attendants, food service workers, and cleaning staff who walked through the door. Each greeted my father by name and did hard work gently.

I noticed something else, too. The mood lighting I’d set for Dad had an effect on his caregivers. They mentioned how nice the mellow music sounded. Shoulders dropped and personalities emerged. I chatted to warm the room and translated as Dad struggled to communicate through accents and cultures. All but one of his caregivers were mid-career women of color, speakers of multiple languages beyond English. 

They know what I’m doing helps Dad. As practitioners, it isn’t hard to put the arts and healthcare combinations together. An integrative environment with multiple medical, social, and neuroaesthetic tools benefits him — and it helps caregivers, support pros, and families, too. Only an industrialist would try to pull it apart.

I admire nurses, along with archivists, crossing guards, and the plant stand lady down the street. Saving the last of anything old, technical direction at critical moments, and a sense of how sustainable communities grow over time. As with nursing, humane service is the motivation and integrative care is the point.

The life-supporting collaborations in my Dad’s hospital room provided a courageous contrast to the D-league political actors exhausting themselves on my work screen. I noticed what I did for Dad out of love (and humble ignorance) and what countless professional caregivers do everyday. 

Versus… this?

I know abuse. You cut it loose. I understood, as anyone who has been derisively sneered at knows. They don’t disagree, they hate me. 

I lost that job. No newsflash there. My creative response at the time. 

Thankfully, Dad recovered, and I’ve learned even more about eldercare this year. My career was damaged and my story transformed. Revealed to me in dim hospital light – where creative practice is valued and where it is not.

Divine Discernment

Last November, I began a period of discernment. After a weird and disturbing professional experience, I was up for a personal transformation. I used the phrase period of discernment strategically to stem the tide of what next questions from well-meaning family and friends. Also, to tend to the paradoxes of my own heart. One wise colleague said, give it a year. More recently, a confidante who saw me through it weekly wondered why it was taking so long.

Paradox (creative tensions) at the center of it all.

Like, how to hold the grief of eldercare when the old guy is actually doing ok. On the one hand, he provides a daily innoculation toward the inevitable. I instinctively watch for the sleepy heaves of his chest as I move quietly through the room. Morning greetings feel profound when Dad jokes, well, happy to wake up. Yet, each day, a task requires me to imagine the times ahead when he is not.

These are the combined exercises of the mind, heart, spirit, and gut. The old management term compartmentalization has revealed its error. Those painful separations into which I was professionally groomed were never truly disambiguated. My internal intelligences weren’t vanquished by setting them aside. Rather, they coiled into powerful rages below my conscious mind. Temporarily rendered mute to my awareness, but unmistakably evidenced in my body. Reintegration requires a constant unpicking and reweaving of my relationships to others in whole context.

These paradoxes are also at the center of my cultural policy work. Thirty years ago, I was crushed to find that a prideful paucity undergirded the policy framework for the arts in American life. Listening closely to dear DC colleagues over two decades made it painfully obvious. Funding conversations rode the same racist, misogynist, homophobic, classist rails as I had experienced in business and academics.

Colonial colloquialisms masqueraded as practical advice.

It’s ultimately all about money and power. There isn’t enough for all of us. Sorry, someone has to lose for others to win. Cultures themselves must functionally compete to exist.

Grasping that was terrifying. The top cultural leaders of the land are themselves markedly inhumane in their management philosophies and practices, communication and advocacy strategies, and professional ethics. Notions of scarcity among the most privileged produce a toxic haze that invites all of us to think lesser of ourselves and our country.

It acted like cryptonite on me at times. I felt delusional, believing so deeply in the creative promise of the democratic experiment. It made for some lonely moments among beloved colleagues, too.

Closer to home, I was characterized as both naive and woke by the Arizona arts executives and appointed commissioners who targeted me last year. It felt entirely absurd at the time. For 90 days, my public persona was cast about in an undignified whisper campaign. Though I was the target, the exercise was (and still is) to mask their own acute leadership dilemmas.

One arts executive budgeted his expected grant much higher than the public panel scored the organization’s proposal. He was short on projected resources and embarrassed in front of his board. In our zoom call, he raised his voice and pounded a fist on the desk. He threatened that he would fire staff and blame it on me. Finally, he was reduced to a pleading puddle as he surmised I would not coddle his entitled emotions.

I offered several workable alternatives — cooperative efforts that could garner much more in resources for the whole arts ecosystem — including his organization’s respected work. He was white with rage. Later, he wrote a five-page diatribe, circulating it among our professional network but never sending it to me. Instead, a commissioner read an excerpt into the record at a public meeting. He accused me of being a smarty pants for suggesting we could do and be more together.

His unregulated emotions and unmanaged expectations evolved into starkly unethical (and likely illegal) actions. Within days, he generated more questions about me among my peers. He found another old dude defensive about his reputation, and out came another public letter. I was unstudied, unskilled, uncouth, and he would tell on me to the then-Governor if I didn’t get ladylike quick.

We’d been colleagues for two decades and Facebook friends for nearly as long. When I contacted him directly to understand his motivations, he blocked me. I later learned of another whisperer — a colleague whose career I’ve fostered in countless quiet ways. A final letter came from the arts advocacy organization; the one without enough cultural literacy to remove ‘citizens’ from its name.

Some creative tensions do result in breaks, unrepaired in this lifetime. Good riddance, but also a waking sadness about what they need not have done, along with delays and missed opportunities. Sorry for those who are cleaning up unnecessarily. Many talented folks stood by, avoiding accountability and defending norms. Those weedy tendrils of transactionalism are invasive in Arizona. Resources siphoned off by the undeniably fortunate — that is a grievous state.

I am turning a corner, though, as my period of discernment reaches synthesis and conclusion.

I’m reminded that in August 2022, I endured the tension headaches, stress shakes, insomnia, and digestive strain by swimming hard every day. Disorienting and reorienting myself through dives and drills that helped me physically cope with the funhouse mirrors at work.

I recall that throughout September 2022, I focused on de-escalation and asked the team to aim for a negotiated resolution. We would not move from our legal and ethical boundaries, I assured them. I was determined in the face of relentless skepticism. The short-term prospects were dire for me, but I knew we could make a crack in the concrete. We laughed together, they can‘t take away my birthday.

In October 2022, I came to grips with my fate. No less than a state HR director, two attorneys from the AG’s office, the commission staff, chair, vice chair, and board, along with five arts executives from the largest Phoenix institutions and one former legislator collaborated to remove me from the room. All haphazardly informed by the fragile egos of three white guys playing daggers with their dictionaries.

I was fired in a demeaning public session at about 3pm on October 26, 2022. By 5pm that day, my email was off. Moments later, my Facebook account was hacked. Porn was purchased with my credit card and posted on my page. Proving the fraud, reversing the charges, verifying my identity, and unlocking my account took the next three weeks.

Those days were terrifying in a different way, wondering if even more sinister attacks were aimed at me. Weeks before the 2022 election with vigilantes at voting boxes in our home district, I couldn’t be sure. I briefly felt that protective urge to cower. Luckily, it tapped my rage. A truer version of myself was set ablaze.

The markings of a leadership crucible are unmistakable. Powers begin to swirl. Polarities arise. The material of the work turns elemental, transforming from one state to another. From excitement to intense fear, for example. Change in a positive direction is no less daunting in the heat of it. As a leader, the trick is to go toward the fire — to be transformed and shape the future from the other side.

In my own case, incensed by the stupidity and injustice, I raged onto the policy page. Commanding ire and fire, I churned out a groundbreaking proposal for arts in public service – a plan that taps federal resources to build the creative workforce in Arizona. Brilliant colleagues rallied on LinkedIn (not hacked) and got it circulating within days.

I sent it to federal, state, and local electeds and their key staffers.

I made sure that our good citizens of the arts could not ignore it.

I let a reporter know it was in development. They said to call them if it amounted to anything.

Social media busybodies told me to shut up, then disappeared in the face of facts and argument.

Allies politely asked me to lead my own defense.

I did fall apart for a time, then.

The holidays came, the new year rang. Family kept me feeling safe. Defensiveness finally melted into discernment through a sojourn in our DC home. Time and distance bore witness, though not taking it personally is nonsense advice.

In the last year, I have examined my circumstances and measured my own mistakes. At this age, wisdom aches like everything else.

I’ve also seen clearly the harm others do. Few amends have been made, so I have consciously said my goodbyes. Last on my list is to write a few letters to the boards and bosses of the bullies who messed with me.

Looking back, it was all magical fall, humane happenings among more potent swirls of spirits and sorcery. Ancestors above and aliens out in the inky night skies. I smile now at the sweet silences and gentle goadings of all our comings and goings.

Also, a bow to the cosmic choreographer deftly dancing across divides, drawing out devilish details in the divine. Another thing I’ve learned this year – I am a witch of water. Yes, there are days in the ditch. I don’t mind.

Tricky Triumphs

There’s a part of my story I haven’t told. Only family and close friends know. From my earliest days, I instinctively knew, too. I would personally care for my father in his old age.

Dad and I had a close relationship from the beginning. My caregiving role began modestly in COVID lockdown. Widowed and living alone in Tempe, Arizona, he was isolated in a new way. At the time, I lived in DC with spouse, cats, condo, and a job.

That year, both our parents received a subscription to StoryWorth, an online platform that encourages family members to share life stories. Mom dove into it, producing an extraordinary collection of essays in under a year.

For Dad and me, it was a chance to talk by phone every Wednesday evening (late afternoon for him). We would do a health check, get groceries ordered online and delivered. Then, I’d transcribe a story from his life into StoryWorth.

The keyboard is a bit beyond him now, but Dad is a good storyteller. He listened to his folks and previous generations. As a result, his memory and observations follow our family migratory patterns from Europe, through Canada and the east, into the American midwest, through to our peculiar branch in Arizona. He has traced our genealogical lines back centuries, and related families, too.

Today, I’m writing from Dad’s office as it is becoming my own. He’s sitting nearby at the dining table in a familiar hunch listening to a mystery on audiobook. Cool green beat-style headphones atop his head, streaming audio from his phone. I’m here wondering what to make of his half-written tome. Also, what about mine?

I renewed his StoryWorth subscription for another year, but we got nothing done in 2021. We still talked quite a bit and got food ordered regularly. A doldrum set into the second year of COVID, and we lost a bit of our weekly creative partnership.

Then, a leadership role in Arizona came up. I moved home to take a great job and become my Dad’s primary caregiver. The first six months of the job were bliss. I took time to get established before moving in with Dad.

When I did, I promptly got COVID. Not a bad case, but four weeks of illness and family worry. A quick lesson in how all plans go wrong.

Two weeks after that, the roof blew off his golf course townhome.

Three months later, the job evaporated.

By Thanksgiving, we’d finally moved back from the temporary housing at a nearby hotel.

Everything intended that year had gone painfully awry. I’d gone to great effort to help my Dad and got much more than I could handle. I was invited to provide a vision for the arts in Arizona, then shown the door ten months later.

It was (and is) very hard. But you know me, it fuels a curiosity, too. His audiobook is the most recent in a series of unmistakable clues.

My somatic healing journey began in my early thirties when a flutter in my left eyelid became so reactive to stress that I couldn’t control my face at work.

Luckily, I found a U Street yoga studio. Up a narrow staircase, a quiet low-lit space allowed me to sit in guided meditation and the company of strangers. Every Monday night, I was reminded that each of us is a precious human birth and that worklife stress is our collective anxiety. That deepening peace in one’s life is available in each breath, and that social peace can only be handwoven.

Peace and productivity, it was a tough juxtaposition in DC. Sadly, I worked in an arts organization that struggled to operate humanely.  Activities to promote transparency, creativity, curiosity, fairness, and teamwork were lost on them. The narrative performance of power was not. It was morally injurious to me.

Moral injury occurs when one is forced to take action against personal dignity, ethics, or social judgment in a way that causes harm to self and others.

Experiences of moral injury can be repetitive and neatly couched in company culture. Get over it. It’s just the way the job is done. Those who react badly are often scapegoated and soon ousted.

A colleague recently described it perfectly. She slowly realized nothing was actually happening from all this talk, except paychecks and a show.

Those moments in the yoga studio helped me ground a creative practice focused on self-healing that has served me well. It has also informed a professional journey that puts me at odds with the majority of my colleagues.

The arts are not ‘at risk’ in American societies, as we’ve been led to believe for nearly half a century. The folks in DC prefer that narrative for their own reasons.

Our cultural exports very definitely cause moral injury in the production and distribution systems, and also through our content. Violent gaming. Dead Women TV. Doom scrolling. Psychotic conspiracy theories — all cultural products of our time. No one one wants to perceive this, much less say it. Mass shootings have become a spontaneous public ritual far more powerful than the ones we plan.

What the field has been taught is ‘scarcity’ was actually a series of great cultural openings. But as policy analysts, bureaucrats, and lobbyists, we were unmoored. Unlike our global peers, American arts leaders missed many of those awakening moments. US cultural policy is now catching up.

Remember Tipper Gore? What we’ve done to export misogyny, racism, and terror in the decades since makes those hearings seem quaint. The current controversy over drag — ironically, arts leaders fostered it to the great benefit of white-walled arts institutions. Uncomfortable bedfellows in an era of profound infidelity to each other, to country, to climate, and to global peace.

How was that ‘scarcity’ constructed? Structural bifurcations that separated arts from humanities, history, the sciences, and education. Intentional distance from language and land policies, the greater social safety net, and international relations. Also, a legendary refusal to relate to philanthropic, corporate, and small business leaders as anything but a check. From the 1990s onward, US arts leaders adopted the ‘cultural wars’ as the leading frame for our work along with the culture of greedy transactonalism characteristic of the era.

Fine, but what does this have to do with Dad’s audiobook, a mystery about a female detective and a dead child?

The promises and perils of today’s cultural industries are neatly summarized in his budding ritual. He’s kept alive, alert, and entertained by the audiobook stories. The plots are still page-turners. Improvements in audio technology have made them accessible in a new and novel way now that his eyesight is failing. Those stories piped through his headphones bring great satisfaction in his days, along with the neuroaesthetic benefits. He has symphonic music (mostly European) on the radio 24/7 in the bedroom. That helps him sleep.

Turns out, our obsession with criminal violence and police procedural makes him happy and content, a worldview I hope diminishes as his generation powers down. Listening only to the great works he knows is a balm at this age. Exploring other genres or traditions, that is a future reach.

Dad expected to die much earlier. Though the technologies are marvels, he doesn’t always want to be alive. As his daughter (and a bit outdated myself) I can relate. I go to the studio to write, draw, dance, and design; to enact and embody thoughts and emotions. Creative practice is a way to connect my own dots, stay lively, and grass-side up.

I know I need it and can’t help but notice the positive effects on Dad. But it still flies right in the face of my old career. American arts continue to be asphyxiated by leaders who have long lost touch with democracy, lived experience in communities, and healthy cultures of productivity.